Roughly 5 years ago, I was introduced to a 13 year old girl. From the outside looking in, I saw a quiet and hard teenager. As I began to know this young lady, I saw a slightly angry, scared, confused girl who covered her feelings with sarcasm, disdain, and a lot of black clothing.
To be honest, when I first met her, I felt a little intimidated. It was only my second year as a physical therapist, making it my first year working in pediatrics. Since pediatrics ranged from birth to 21 years old, I was used to having a lot of patients in the baby range up to 10 years old but working with a teenager was a newer area for me. I have always found communication to be easy for me...except in this case. She would sit there as I talked and look at me like I was a little crazy, nodding her head or giving me a short answer if my question required more than a simple "yes" or "no".
As I began to hear her story spoken in bits and pieces from her lips but primarily from her mom's, my heart sank low into my chest. The day before her 4
th birthday, she was taken to the hospital with a sudden onset of severe physical symptoms. After extensive testing, they diagnosed her with
Ependymoma-a tumor on her spinal cord. At that point, her oncologist told the family that they should begin to make preparations for a funeral since she would have very little time to live. Her family however had deep faith and believed that God could heal their precious little girl.
Fast forward 14 years and you meet one of my favorite patients of all time! The last 14 years have not been easy. Chemotherapy, wheelchairs, radiation, therapy, walking, no control of her lower body, walkers, jumping, standing frames, driving. If it feels a little sporadic, it is. Depending on the growth of the tumor and how much pressure it places on the spine determines what her level of mobility will be. The last 5 years in particular have had many highs and lows and as her physical body adjusts to the constant change, I have watched her faith grow through the questions she is willing to ask. What a joy it has been for me to be able to share a special friendship with her through all the ups and downs.
So, as I celebrate her graduation from high school and I celebrate 5 months of life with my precious son, I am reminded that I am truly blessed to experience the best of both worlds
between work and family!
